Links to Web Resources
NIH Genetics & Ethics Resources and Listings
More Biotech Policy and Ethics Links: NIH Listings of Outside Resources
General:
Includes scientific societies, government institutes
and councils, academies, industry groups, and science and medical advocacy
groups, all of which have been recommended by scientists.
NIH Genetics & Ethics Resources and Listings
Bioethics
and the NIH
Office of Science
Policy and Planning (OSPP)
The principal site for science policy and planning for the NIH, OSPP coordinates
the Trans-NIH Bioethics Committee (T-NBC) as well as activities in science
policy, planning, biomarkers, and economic studies.
Office of
Biotechnology Activities (OBA)
Monitors scientific progress in human genetics research in order to anticipate
future developments, including ethical, legal, and social concerns, in
basic and clinical research involving Recombinant DNA, Genetic Testing,
and Xenotransplantation. It also manages the operation of advisory committees.
Policy
and Ethics
Information from the National Human Genome Research Institute (NHGRI).
Resources regarding critical issues and legislation surrounding genetics
research.
Ethical,
Legal, and Social Implications (ELSI) Program
Of the National Human Genome Research Institute (NHGRI) - established
in 1990 to to identify, analyze, and address the ethical, legal, and social
implications of the Human Genome Project (HGP) at the same time the basic
science issues are being studied. The web site provides background information,
press releases, links to genome ethics policy and legislation and off-site
funding for genome ethics research.
Bioethics
Documents
Guidelines, FAQs, fact sheets, position statements, and reports
Named
Populations in Genetic Studies
Academic
Centers involved in teaching bioethics
More Biotech Policy and Ethics Links: NIH Listings of Outside Resources
Genetics
Resources on the Web (GROW)
Listing of organizations that have come together to provide a forum for
high-quality information about human genetics
International
Organizations
Handle bioethical issues from a global or non-U.S. perspective
Professional
Bioethics Organizations
Professional forums and societies
NIH
Listing of Online Stem Cell Resources
NIH
Research Ethics and Stem Cells
Stem
Cell Research, the Official NIH Resource
Stem
Cells and the Future of Regenerative Medicine
A 2002 report from the National Research Council and the Institute of
Medicine.
Stem
Cells: The International Journal of Cell Differentiation and Proliferation
A collection of selected papers and archives of past issues freely available
online.
MedlinePlus
Health Information Site on Stem Cells and Stem Cell Transplantation
Links to latest news from the NIH and elsewhere, clinical trials, research,
organizations, newsletters and statistics about stem cells.
National
Bioethics Advisory Commission (NBAC)
Archived reports (including Ethical Issues in Human Stem Cell Research,
1999) from the National Bioethics Advisory Commission, whose charter expired
in October 2001.
Monitoring
Stem Cell Research
A 2004 report from the President's Council on Bioethics.
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